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RESEARCH ARTICLE |
Arlene R. Gordon Research Institute, Lighthouse International, New York, New York.
Address correspondence to Verena R. Cimarolli, PhD, Lighthouse International, 111 East 59th Street, New York, NY 10022. E-mail: VCimarolli{at}lighthouse.org
| Abstract |
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Methods. Participants were 584 older men and women with age-related vision impairment who applied for services at a vision rehabilitation agency. Path analysis was used to examine the effects of perceived overprotection on two positive indicators of adjustment: vision-specific adaptation and environmental mastery. Moreover, antecedents of perceived overprotection were examined.
Results. Higher levels of perceived overprotection were associated with less optimal adjustment to age-related vision loss, with lower scores on measures of vision-specific adaptation and environmental mastery. Higher levels of functional disability and instrumental support received were associated with higher levels of perceived overprotection.
Discussion. Findings indicate that support providers of older adults with visual impairment as well as vision rehabilitation service providers need to be aware of the detrimental impact of perceived overprotection.
FOR MANY older adults, an age-related decline in the ability to perform activities of daily living often means that family and friends have to assist with certain tasks, especially at the onset of a disability. Unfortunately, receipt of instrumental support may actually set the stage for older adults to perceive their support providers as being overprotective, which has been considered a problematic aspect of receiving support (Diehl & Willis, 2003
; Thompson, Galbraith, Thomas, Swan, & Vrungos, 2002
). Perceived overprotection is defined as "a perception on part of the ill adults that he/she is overhelped, induced to be dependent, shielded from stress, and generally not treated as an adult" (Thompson & Sobolew-Shubin, 1993a
, p. 87). Individuals who perceive the care that they receive as overprotective have the feeling of being unnecessarily helped or overly restricted by support providers (Thompson & Sobolew-Shubin, 1993b
).
Studies that have conceptualized perceived overprotection as such have found a relationship between perceived overprotection and the occurrence of depressive symptoms among stroke patients (Evans & Miller, 1984
; Mulhall, 1978
; Newman, 1984
; Thompson & Sobolew-Shubin, 1993b
; Thompson, Sobolew-Shubin, Graham, & Janigian, 1989
), cancer patients (Kuijer et al., 2000
; Thompson, 1992
), and healthy, community-dwelling older adults (Thompson & Sobolew-Shubin, 1993a
). The theory of learned helplessness (Seligman, 1992
) has been used to explain the link between perceived overprotection and depression. Feelings of overprotection can lead to a sense of loss of control (Thompson & Pitts, 1992
), and consequent helplessness can lead to depression (Avorn & Langer, 1982
; Hyman, 1971
; Thompson & Sobolew-Shubin, 1993a
; Thompson & Spacapan, 1991
).
Besides demonstrating the detrimental impact of perceived overprotection on depression, prior research has also documented its negative impact on rehabilitation outcomes. For instance, perceived overprotection among stroke patients led to the patients' decreased motivation to work in physical therapy programs (Evans & Miller, 1984
; Mulhall, 1978
; Newman, 1984
; Thompson, Sobolew-Shubin, Graham, & Janigian, 1989
).
Studying overprotection in a functionally disabled population is particularly relevant, not only because experiencing a disability entails the reliance on help from others, but also because the negative effects of perceived overprotection may further exacerbate the impact of the disability already decreasing the older person's sense of personal autonomy (Brandtstaedter & Rothermund, 1994
; Nadien & Denmark, 1999
; Schulz, Heckhausen, & O'Brien, 1994
), and may, therefore, lead to excess disability. A common chronic health condition found among older adults is age-related vision loss, with 20% of Americans 65 years old and older reporting some type of vision problem even when using corrective lenses (Lighthouse Inc., 1995
). Research has demonstrated that vision loss significantly predicts functional disability in older adults after controlling for age, gender, and comorbidity (Burmedi, 2003
; Horowitz, 1994
; Rubin, Roche, Prasada-Rao, & Fried, 1994
) and, in fact, has been found to be the second most frequent chronic illness causing disability in elderly persons (Ford et al., 1998
).
In a visually impaired population, overprotection can be viewed as an especially salient issue, not only because age-related vision loss represents a chronic disabling condition, but also because vision loss is often associated with falls and injuries (Tideiksaar, 1997
). Therefore, the perception of older adults with visual impairments that their support network is overprotective might be especially likely among older adults with vision impairment because of the safety issues involved. But the role that is played by perceived overprotection in adaptation to a prototypical, age-related chronic impairment (vision loss) rather than an acute impairment (stroke) or potentially life-threatening illness (cancer), however, has not yet been explored in a systematic manner. Plus, the effects of perceived overprotection on positive aspects of psychological well-being, such as mastery and psychosocial adaptation to impairment, remain unexplained given the focus of prior work in this area on depression as an outcome.
Moreover, the pathways through which older disabled adults come to perceive the support and care that they are receiving as overprotective are unknown. Being disabled may represent one pathway, and another pathway may be the actual receipt of instrumental support which may set the stage for an older adult to perceive the support that they are receiving as overprotective. Functional disability and the receipt of instrumental support can therefore be viewed as antecedents of perceived overprotection.
An abundance of research has shown that positive types of social support, specifically perceived and received emotional support as well as perceived instrumental support, have beneficial effects for well-being and promote successful adjustment to stressful life events such as a chronic vision impairment (e.g., Cohen, 1992
; Hobfoll & Vaux, 1993
; Horowitz, Reinhardt, McInerney, & Balistreri, 1994
; Reinhardt, 1996
, 2001
; Reinhardt, Boerner, & Horowitz, in press
; Sarason, Sarason, & Gurung, 1997
). In contrast, the actual receipt of instrumental support has been shown to be either unrelated or to have a negative association with well-being (Kaul & Lakey, 2003
; Lakey & Lutz, 1996
; Reinhardt et al., in press). It may be that the receipt of instrumental support is unrelated to well-being or has a negative association because, as pointed out, the receipt of instrumental support may lead older adults to perceive the help that they are getting as overprotective which, in turn, may lead to less optimal adjustment. Therefore, perceived overprotection may mediate the impact of instrumental support received on outcomes.
The purpose of the present study is threefold. First, it aims to investigate the effect of perceived overprotection on positive indicators of psychosocial adjustment (mastery and vision-specific adaptation) to a prototypical, age-related, chronic disabling condition (vision loss). Second, it aims to understand if functional disability as well the receipt of instrumental support set the stage for older, chronically disabled adults to perceive the help that they receive as overprotective. Stated differently, it aims to understand if being disabled and the consequent need on relying on one's social support network for help in accomplishing necessary daily tasks makes older adults more likely to perceive their support providers as overprotective. Therefore, this research aims to determine if functional disability as well as the receipt of instrumental support function as predictors of perceived overprotection. Finally, it aims to determine if perceptions of overprotection mediate the effects of instrumental support received on the outcomes. Therefore, this research seeks to contribute to the conceptual knowledge about problematic aspects of support receipt that may hinder the psychosocial adjustment to chronic disabling conditions.
Hypotheses
Figure 1 depicts the conceptual model of the study. It is noted that, on the basis of prior work on perceived overprotection, demographic variables were not expected to play a role in the relationships among variables and thus were not included as predictor variables. According to the proposed conceptual model, we first hypothesized (in line with the first aim of the study) that increased levels of perceived overprotection will be associated with less optimal psychosocial adjustment to vision loss, specifically with decreased levels of environmental mastery as well as vision-specific adaptation. In line with the second aim of the study, it was hypothesized that increased levels of functional disability as well as instrumental support received would be associated with increased levels of perceived overprotection. Moreover, in line with the third aim of the study we hypothesized that perceived overprotection would mediate the effect of instrumental support on the outcomes with higher levels of instrumental support having a negative impact on outcomes through perceived overprotection. The predictions regarding the remaining pathways in the conceptual model were based on prior research. Prior research has shown that older adults with vision impairment activate instrumental support at the onset of a disability (e.g., Reinhardt, 2001
). We, therefore, hypothesized that higher levels of functional disability will be associated with higher levels of instrumental support. Moreover, on the basis of prior research that has shown that having a disability impacts an older person's sense of mastery (Brandtstaedter & Rothermund, 1994
) as well as adaptation (Reinhardt, 2001
) independently of other factors, we hypothesized that functional disability would have an independent, negative effect on mastery and adaptation to vision loss.
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| METHODS |
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Fifty-three percent of study participants were women, as a function of oversampling older males. The average age of participants was 80.4 years (SD = 7.6) with ages ranging between 65 and 100 years. The vast majority of participants were Caucasian (83.7%), 12.2% were African American, 3.6% were Hispanic, and 0.5% were from other races (e.g., Asian). Forty-one percent of participants reported that they were married, 43% were widowed, 9% were never married, and 7% were divorced or separated. Twenty-nine percent had less than a high school education, 25% were high-school graduates, 20% completed some college, 12% were college graduates, and another 13% went to graduate school. Regarding income adequacy, 4% indicated that they "can't make ends meet," 40% of participants indicated that they "just manage to get by," 34% said that "money is not a problem" for them, and 22% had "enough money with a little extra."
Measures
Functional disability
Functional disability was assessed with a modified version of the Older Americans Resources and Services (OARS) Multidimensional Functional Assessment Questionnaire (Center for the Study of Aging and Human Development, 1975
). The modified version, which has 4 additional items assessing functional tasks that may be affected by vision loss (difficulty identifying bills and coins, difficulty identifying one's clothing, difficulty identifying food on one's plate, and difficulty getting around in unfamiliar places), consists of 7 items assessing personal activities of daily living and 11 items assessing instrumental activities daily living. Respondents are asked how much difficulty they have performing these 18 activities of daily living by rating them on a 4-point scale (1 = no difficulty; 4 = can't do without help). The point ratings of the 18 items were summed to create a total functional disability score ranging between 18 and 72, and
=.89 for this sample.
Social support
Received instrumental support was assessed for family and friends/neighbors separately. Each of these scales had 5 items which asked how often over the past month participants received help with shopping, housekeeping, transportation, mail, and finances (measured on a 6-point scale; 1 = not at all, 6 = every day). The content of the first 3 items was taken from the Arizona Social Support Interview (Barrera, Sandler, & Ramsay, 1981
), and the other two were added as they pertain to types of help persons with vision impairment report receiving. For this analysis, scores from the family and friends/neighbors scales were combined to obtain a global indicator of received instrumental support. Reliability analyses of the present data produced
=.84 for the Family Instrumental Support Scale and
=.77 for the Friend Instrumental Support Scale. It is noted that received support (not perceived support) was studied, so that respondents would have something on which to base their judgment of overprotection.
Perceived overprotection from family and friends was measured using the 8-item short version of the Overprotection Scale for Adults (OPSA; Thompson & Sobolew-Shubin, 1993a
). Respondents are asked to rate their degree of agreement or disagreement with statements regarding overprotection on a 4-point Likert scale (1 = strongly disagree; 4 = strongly agree). Sample items include: The people around me don't let me do the things I could do myself," "Sometimes those around me treat me like a small child," "People do not think that I can take care of myself," and "Sometimes I feel that others try to control everything I do." Scores on this scale can range between 8 and 32, and
=.85 for this sample.
Adjustment to vision loss
Adjustment to vision loss was measured using an indicator of psychosocial well-being (environmental mastery) and an indicator of vision-specific adaptation (adaptation to vision loss). Environmental mastery was assessed using the Ryff and Keyes (1995)
9-item scale. Respondents are asked to rate (on a 4-point Likert scale) their degree of agreement or disagreement with statements regarding how much control they have over their surroundings (1 = strongly disagree; 4 = strongly agree). Sample items include: "In general, I feel I am in charge of the situation in which I live," "The demands of everyday life often get me down," "I do not fit very well with the people and the community around me," and "I often feel overwhelmed by my responsibilities." Scores can range between 9 and 36, and
=.78 in the present sample.
Adaptation to vision loss was measured using the 14-item version of the Adaptation to Vision Loss (AVL) scale (Horowitz & Reinhardt, 1998
, 2005
). Factor analysis of the scale indicates that although different aspects of psychosocial adaptation are reflected in the items (i.e., realistic acceptance of limitations associated with vision loss while concurrently recognizing continuing capabilities; openness of learning new ways of doing things through rehabilitation; and appropriate use of help from family members and friends), the scale is more consistent with a unidimensional measure (Horowitz & Reinhardt, 2005
). Using a 4-point Likert scale (1 = strongly agree; 4 = strongly disagree), participants were asked to respond to statements encompassing the above domains. Sample items are: "Visual impairment is the cause of all my problems," "As a person with vision loss, I can become more independent by learning new ways of doing things," and "I feel comfortable asking my family and friends for help with things I can no longer do, because of my vision loss." Reliability analyses of the present data showed
=.85 for the 14-item AVL scale.
| RESULTS |
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2[2, N = 569] = 1.62; p =.45; Adjusted Goodness of Fit Index [AGFI] =.99; Normed Fit Index [NFI] = 1.00; Root Mean Square Error Approximation [RMSEA] =.00; Comparative Fit Index [CFI] = 1.00). Models with an AGFI, NFI, and CFI in the midpoint 90s or above represent a reasonably good fit to the data (Hu & Bentler, 1999Table 3 contains direct and indirect parameter estimates for all variables. To test the first study hypothesis, the direct paths between perceived overprotection and the outcome variables were examined. Results show that there was a significant direct, negative effect of overprotection on environmental mastery (ß = .21) as well as on adaptation to vision loss (ß = .23). Results also confirm the second hypothesis with regard to antecedents of perceived overprotection in that both functional disability and instrumental support had a significant direct, positive effect on perceived overprotection (ß =.29 and ß =.18, respectively). The third study hypothesis was also confirmed: Instrumental support had a significant, indirect negative effect on environmental mastery (ß = .04) and adaptation to vision loss (ß = .04) through perceived overprotection. Finally, functional disability as predicted based on prior research not only had a significant direct, positive effect on instrumental support (ß =.28), but also had a significant direct, negative effect on environmental mastery (ß = .37) and adaptation to vision loss (ß = .41), the two indicators of adjustment.
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| DISCUSSION |
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Findings also demonstrated that functional disability resulted in increased feelings of perceived overprotection from family, friends, and neighbors in this sample of visually impaired older adults. This may be due to association of vision impairment with increased risk of falls and injuries (Tideiksaar, 1997
), which in turn results in relatives and friends being concerned about and involved in the safety and well-being of the older adult. This concern and involvement may result in the perception of one's support providers as overprotective.
In addition, the finding that higher levels of instrumental support resulted in higher levels of perceived overprotection supports the idea that receiving instrumental support can set the stage for an older adult to perceive the care that they are receiving as overprotective. The receipt of instrumental support, therefore, represents one of the pathways through which perceptions of overprotection develop in older, chronically disabled adults. Functional disability was also associated with increased receipt of instrumental support. Thus, the data support that older adults, when faced with a disability, such as age-related vision loss, activate social support with the goal of adjustment and coping, as other research on older adults coping with vision loss has found (Horowitz et al., 1994
; Reinhardt, 1996
, 2001
). Finally, the present research demonstrates that functional disability decreases one's sense of mastery and one's ability to adapt to age-related vision loss. These last two findings support the theoretical link that has been made between functional disability and loss of control (Brandtstaedter & Rothermund, 1994
; Nadien & Denmark, 1999
) and confirm other research establishing the empirical link between functional disability and adaptation to age-related vision loss (e.g., Reinhardt, 2001
).
Several limitations of the present study are acknowledged. Participants were significantly more likely to be Caucasian, younger, and married when compared to refusals. Moreover, the study was of cross-sectional nature, and support providers were not interviewed. Therefore, future research should investigate the impact of perceived overprotection on adjustment to age-related vision loss using a longitudinal research design. Such longitudinal research efforts could incorporate the impact of vision rehabilitation services on perceived overprotection and adaptational outcomes. It is possible that perceived overprotection represents an initial reaction to the support that older adults receive at the onset of a disability. Subsequently, feelings of overprotection may subside after the receipt of vision rehabilitation services, which focus on teaching independent living skills. Future research may also focus on the study of additional social support predictors of perceived overprotection, such as negative interactions, and perceived adequacy of both instrumental and emotional supports. Moreover, the inclusion of support providers in addition to support recipients in future research will further the identification of the antecedents and dynamics of perceived overprotection.
Despite its limitations, this study has practical implications for the development and design of vision rehabilitation services which aim to teach visually impaired individuals to maximize their functional ability and to enable them to lead more independent lives despite having a disability. Findings point toward programs, such as support groups, that include support providers of visually impaired older adults and that address issues around perceived overprotection as well as the potential risks surrounding this problematic aspect of receiving support. Consequently, having support groups for family members and friends (as part of the rehabilitation process) could raise awareness that perceptions of overprotective care have detrimental effects on the older adult's ability to adjust to age-related vision loss. Moreover, the research has implications for raising the awareness about perceived overprotection among vision rehabilitation providers working with elderly persons and their families. These service providers, who in many cases not only work very closely with the visually impaired persons, but also with their family members and sometimes friends, can address issues around perceptions of overprotection in the course of service provision and help to promote optimal adjustment to age-related vision loss.
| Acknowledgments |
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| Footnotes |
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Received for publication November 3, 2004. Accepted for publication June 6, 2005.
| References |
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This article has been cited by other articles:
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J. P. Reinhardt, K. Boerner, and A. Horowitz Good to have but not to use: Differential impact of perceived and received support on well-being Journal of Social and Personal Relationships, February 1, 2006; 23(1): 117 - 129. [Abstract] [PDF] |
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